The Orbost Golf Club will host its sixth annual Jarrah Beveridge Golf Day on Saturday.
The event raises money for A-T research, the little known disease, Ataxia Telangiectasia, that Jarrah was diagnosed with as a toddler.
The event gives the local community an opportunity to do its bit to find a cure for the rare and incurable blood disease, which affects only 40 children in Australia.
A-T sufferers have the worst symptoms of cerebral palsy, muscular dystrophy and cystic fibrosis, with most kids ending up in a wheelchair by the
age of 10 and life expectancy shortened to early
adulthood.
The event is a mixed four person or men’s four person ambrose, with players to assemble at 9.30am for an 10.15am shotgun start.
There will be all day sausage sizzle, raffles and a monster auction with all money on the day raised going to BrAshAAtaxia Research Fund.
All golfers and non golfers are welcome to attend and join in the fun.
