The sixth annual Jarrah’s Journey Easter golf event was held at the Orbost Golf Club last Saturday, raising $3700 for A-T Research Fund to support the ongoing search for a cure for the disease.
Jarrah was diagnosed with the little known disease, Ataxia Telangiectasia, when he was just a toddler.
The event gives the local community an opportunity to do its bit to find a cure for the rare and incurable blood disease, which affects only 40 children in Australia.
A-T sufferers have the worst symptoms of cerebral palsy, muscular dystrophy and cystic fibrosis, with most kids ending up in a wheelchair by the age of 10 and life expectancy shortened to early adulthood.
Golfers and non golfers enjoyed wonderful weather for the day and the golf course was again presented in fantastic condition by the hard working team of local volunteers.
This was appreciated by all participants and was echoed by comments from many players including visiting teams from Lakes Entrance and South Pines Golf Clubs.
Event organiser Mark Glenister was very happy with the turnout of close to 60 who entered for this year’s event.
Prior to announcing the winners for the day Mark thanked the team of people who assisted with the running of the day, the barbecue, selling raffle tickets, setting up the club rooms and cleaning up at the end of the day.
All sponsors and donors who were so generous with their support for the charity fundraiser were also thanked, as was local legend Dickie Johnston for his entertaining and energetic auctioning skills.
Winners for the day were “Carly’s Crusaders” in the mixed event, the team included Reg Armstrong, Gary Carr, Barry Crowe, Jennie Smith and Stu Washington.
In the men’s event, “The Green’s” were successful, the team consisted of Mathew Marshall, Craig H Brown, Blake Robinson and Tye Robinson.
