Excitement is building for the Jarrah’s Journey fundraiser on Saturday, November 9, with the day set to be jam-packed with events for everyone.
The day will be split into two events, Jarrah’s Kids Day and Jarrah’s Journey Ball, and both will be hosted at The Old Bottle Shop at the Orbost Club Hotel.
The kids day will feature a petting zoo, face painting, a jumping castle, a barbecue and a handball competition held by the Orbost Snowy Rovers Football Netball Club.
There will also be a special visit from Bluey and other characters.
The kids day will run from 11am-1pm.
As the kids day wraps up, the Jarrah’s Journey Ball gets underway, kicking off with a cocktail hour at 6.30pm and live music from Ryan Shore and Jaime Spicer.
At 7.30pm, the auction will start, hosted by Orbost Fire Brigade Captain, Dick Johnstone, before The Jimmies perform from 9pm.
More than 150 tickets for the ball have already been snapped up, however attendees can purchase tickets at the door.
All proceeds from the event will be donated to charity organisation, BrAshA-T.
Jarrah’s Journey is a charity close to the heart of Orbost and surrounding communities.
A local Orbost family founded the charity “Jarrah’s Journey”, after their son Jarrah Beveridge at the age of two was diagnosed Ataxia Telangiectasia (A-T)
A-T is a rare and incurable disease often described as the worst parts of cerebral palsy, muscular dystrophy and cystic fibrosis.
Their life expectancy is very young and most children will be in a wheelchair before their teenage years and require full time care.
Jarrah is one of only 40 children in Australia battling A-T.
BrAshA-T was founded in 2007 by Sean and Krissy Roebig from Brisbane after two of their young children were diagnosed with A-T.
Determined to do something about their situation, the Roebigs created the charitable foundation called BrAshA-T to raise money to support research into finding a cure and as a means for creating a support network for other families dealing with A-T.
Children are born apparently healthy but from around two years old their balance and coordination deteriorate and they are often described as ‘wobbly’ or ‘clumsy’.
Most children with A-T require the regular use of a wheelchair before their teenage years and as time progresses, need full-time care.
To donate to Jarrah’s Journey, check out the Facebook page, or head to the BrAsh-AT website.
